Saturday, 17 March 2012

17/03/12

We arrived at ICU to a Jules who was much calmer this morning. The nurse advised she was breathing well with the assistance of the ventilator.
 
After a couple of hours and a number of visitors she tired and became agitated and breating became difficult for her.  She had some quiet time during the afternoon and settled down and when Kylie and I were allowed back in about 5:30PM she was calm again.  She is frustrated at our inability to read her lips and communicate with her so time in with her is mostly quiet talking to her touching her forehead and telling her to breathe slowly and deeply as shortness of breath upsets and stresses her and she loses the rythym of her breathing and the ventilator takes over.  She is still on some small quantities of sedative drugs to calm her and help her rest at tmes through the day.  She has a TV in the ward and it was on sometimes during the day, she isn't really able to watch programs but I think the presence is comforting.

One thing I was able to lip read was "why am I here" and I explained to her about her accident she had no recollection of it or the events that followed.  It seemed that the surgery, anaesthesia, morphine and sedatives had caused some amnesia.  Ky and I could then understand her concern and confusion as to where and why she was in the ICU.

 The nurse today was very good at explaining things about Jules treatment and how things may be expected to progress.  She said Jules was likely to spend weeks in ICU before being transferred to the spinal unit and that she would arrange for us to meet with the Spinal unit staff early next week for a briefing on likely scenarios.
 
Kylie and Darrel are amazing they are so caring and compassionate.  Ky is so organised and logical in thought and planning, she puts me to shame.  The visiting is stressful and tiring for us all after a day in the ICU waiting room we are all totally exhausted.  I am trying to make sure we eat properly and at least have a good healthy breakfast and something substantial at night.  It would be so easy to eat junk food on the run but would do none of us any good

 Fleur Thresher brought her dads car down today and we have found our dedicated parking space in the complex.  It is just a little bit more independence.  Darrel has had the use of a car from Russell and Colin and has been collecting us from our accommodation and chauffering us about, this has been a great help.  We have had so many offers of all forms of help and assistance our hearts are warmed by the the generosity and compassion of Jules friends.

 Today was one step of many on a long journey.

 We will update you all further tomorrow.

 Kind regards Val, Norm, Kylie and Darrel


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