I can't believe nearly 3 months of gone by since my last blog, I am so sorry it has taken this long.
As always please excuse the errors in this blog, iPad voice to text really needs improvement...
Things have been very much up and down over the last three months sometimes it feels like two steps forward and one step back and sometimes it feels like one step forward and two steps back!
Shortly after the last blog I managed to burn myself quite badly on a plate of Gozleme (Filled Turkish pancakes). I decided to be independent and go and get the Gozleme while Darrel ordered us some coffees. When I paid for them I asked the market stall holder to put them on my lap when they were done, straight off the grill on a paper plate. They started to slip off my lap on the way back to Coffee Dominion so I held them down with the back of my thumb - I could tell they were pretty hot! By the time I got back to the cafe even my leg was hot. Fortunately I found a table fairly quickly and got Darrel to put them on the table.
I like finger food as I can feed it to myself which makes me feel not quite so gimpy. I polished off those pancakes in record time. When we left the markets a little later I realised my leg still felt like it was burning. As did my thumb. Which had a huge blister on it. By the time we made it back to my place the blister on my hand was even bigger and I was really worried about my legs. Given the size of the blister on my thumb it was pretty easy to make a decision to cut my pants off, I good thing as the blisters on my legs were also huge. Those of you on Facebook may have seen some photos. Darrel was absolutely fantastic getting me to ice the burns for 20 minutes on and off for the next six hours And then helping to get me into bed without using the hoist And then finally getting the paramedics to visit. The paramedics told me to see a doctor the next day. I was too scared to get out of bed using the sling as I thought it would pop the blisters on my leg so managed to convince Dr Tracy Simmons to visit me at home. She was fantastic and advised me to take it easy while they were healing.
My wonderful sister came around the next day with a magical healing light, a bottle of disgusting aloe Vera juice, Vitamin C and zinc tablets and some printouts from http://www.apparelyzed.com
to illustrate that I was not the only person to do this and therefore not the stupidest person that ever lived
I spent the next four weeks doing no exercise, reading lots and watching lots of TV series including all five seasons of damages. I sure did miss my exercise endorphins and became quite depressed and horrible to be around. My mood may have been exacerbated by a change to my drugs (Lyrica), And the fact that the stick in the arm was due to be changed, and increased pain levels due to lack of exercise.
I managed not to get the blisters infected But have had a few trips to the emergency department for other infections In the last three months.
Since the burn I have become almost addicted to http://www.apparelyzed.com/forums
It is my first point of reference for everything related to disability and sci even though I don't like some of the answers. I had been very hopeful when I read about the phase 3 trials that are being carried out by ChinaSCINet see
But it seems people have been saying for years that a "cure"Is just a few years away... So it turns out that while I am mostly good at managing day to day contemplating a much much longer term with this injury Is really tough And really confusing When you need to think about the best way to manage financially physically and mentally. It can turn you into a bit of a basket case some days.
Fortunately I got back into the exercise and even managed a few new personal bests - 10 km on the leg bike in 56 minutes and a new top speed of 45 RPM. And remember folks that's all me, no help from the bike at all! Now I just need to replicate that or better it... Hydrotherapy has stopped for winter so I have no new records - But I have been "air-swimming"On the edge of the yoga table So I don't forget what to do :-)
I have had some lovely visitors recently - Margie and Ralph from Cairns and Sam from Brisbane. We managed to continue the tradition of long lunches at a touch of salt restaurant.
I can't believe that August a.k.a. Scrabble month is already upon us, the Townsville tournaments are on the 17th and 18th, the Magnetic Island tournament is on the 21st and the Cairns tournaments are on the 24th and 25th. And I don't know enough words!!! And it will be my first trip away since arriving home!!! And it's a long drive!!! Do you think I'm nervous much?!
Mandy and Brett's wedding is on the weekend after Cairns In mission beach, I have managed to find some nice wheelchair friendly accommodation at Lillypad's cottages.
I have also finally booked to go to walk on Sydney in September for some more intensive physio. My entourage and I will be staying at the free SCIA Choices apartment at breakfast point. I have loads of questions to ask the staff about equipment that I am looking at purchasing (Thanks again JB movement movement). I will also be meeting with the manager of the program to try and entice one of the staff to come to Townsville for a week to help train my Physio and yoga Instructor.
The final bit of news for today is that my gorgeous niece Cali has to give a speech on a person that they find inspiring and that she has chosen me, which is very touching and over whelming. I cried a bit when I first heard! as I have been dictating and typing this blog for three hours now I will bid you goodnight I hope you are all happy and well
xx
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