Wednesday, 4 July 2012

We will fight them on the beaches

Apologies for the long gap between posts, the are enough frustrations but not enough hours in a day. Since my last post we have fallen foul of the safety nazis. They deemed my storage units were a safety hazard no amount of reasoning would convince them otherwise. They deemed they had to go. As someone familiar with OHS I asked to see the risk analysis but none was available. A compromise was reached if they could find a bed with adequate storage I would move to room 1 bed 1 where there was a storage cupboard. Moving on short notice was a pain in the butt particularly with little assistance from the nurses. Val worked tirelessly repositioning photos and organizing cupboards and drawers not finishing until after 9:30pm. Darrell drove my car down arriving on Friday night and was able to visit before I went to sleep. We went to Riverside markets and had a wonderful lunch at Il Centro I could have killed for a cold glass of sav blanc. Reversing the power chair out of the taxi onto the elevating platform is a frightening experience, not so much a leap of faith but blind trust. Note must check out reversing cameras. Today is the first day I made it to physio since moving to the new room. They are not organized to get people up and shower them in time for treatment. Had a discussion with the nurse unit manager about this and other issues yesterday. Hopefully matters will continue to improve. Two nice events today a visit from Robin Hamblyn for a cup of coffee and a chat and when I returned to my bed there was a lovely gift from Myles Thresher all the way from Bristol in the UK?. OT have made a typing splint for me get more practice on soon. Today in physio I was upright for 40 minutes until I became dizzy at the smell of an alcohol wipe, funny that. We tried the neuro electrical muscle stimulator or NEMS on my right forearm to cause the wrist extender muscles to work. The idea is to try to help connect with your neural pathways. It causes a limp wrist and fingers to extend. Also physio related was another AASIA assessment last week basically the poke you with sharp and blunt instruments and you are to identify sharp or blunt. This is not much fun and seems to have made my right leg hypersensitive. On the plus side in the muscle tests they recorded a flicker of movement in my left leg. I have been hiding out in the visitors lounge most afternoons this week, this gives me extra practice navigating a regular size door with the power chair. The door frame has stood up to this quite well :-) I have tested the power chair on quite a few occasions and clocked it at 9.8km/hr just unr the maximum regulated sped of 10km/hr. I was disappointed that they cannot be souped up further see http://www.farmshow.com/view_articles.php?a_id=268p

4 comments:

  1. Hi Jules, wow! Your levels of independence are coming along in leaps and bounds! Scrabble at the Norman, lunch at Il Centro, trips to MOMA ... am very impressed with your social life. Hope you can fit us in when we come through town later in the year. All the best from Shanghai.

    Love, the Lacy clan.

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  2. Julie if you had that motorcycle sidecar that would crack me up! You would bring sexy back to that! Keep it up. Sorry to hear about the delays and incompetence. Helen.

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  3. just doing a bit of planning for the tourney on Wednesday, glad the nerves are responding.

    cheers
    Martin

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  4. Hi Julie,
    Just wanted you to know I have been thinking of you while you make your amazing journey back to health. Your positive attitude in the face of adversity is truly inspiring. Loved the video of one of your first chair excursions. Glad the hospital engineering is standing up to some punishment.Can't even imagine a scrabble score in excess of 600. i think i am pretty darn good if I crack the 400. Take care and best regards. Sue Brock (nee Stanton)

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